On Dec. 15, 2021, the AANS and the CNS sent a letter supporting the Cerebral Cavernous Malformations Clinical Awareness, Research, and Education (CCM-CARE) Act (S. 3390). Sponsored by Sens. Ben Ray Luján (D-N.M.) and Martin Heinrich (D-N.M.), this legislation would provide crucial insights into cerebral cavernous malformation (CCM) by expanding research at the National Institutes of Health, the Centers for Disease Control and Prevention and the U.S. Food and Drug Administration, to increase awareness, treatment and prevention of the condition. CCM is a devastating, rare genetic blood vessel disease that impacts the brain and spinal cord in over 600,000 Americans. Most people with the disease do not realize they have it until they experience symptoms, including neurological deficits, seizures, stroke or sudden death.
Click here to read the letter.
