Dear Senators Lujan and Heinrich,
On behalf of the American Association of Neurological Surgeons (AANS) and the Congress of
Neurological Surgeons (CNS), we are pleased to support your legislation, S. 3390, the Cerebral
Cavernous Malformations Clinical Awareness, Research, and Education (CCM-CARE) Act.
As you know, cerebral cavernous malformation (CCM) is a devastating, rare genetic blood vessel
disease that impacts the brain and spinal cord in over 600,000 Americans. Most people with the disease
do not realize they have it until they experience symptoms, which include neurological deficits, seizures,
stroke or sudden death. The only treatment available is brain and spinal surgery, and that can help only
certain patients.
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