Letters

AANS and CNS Supports The Access to Claims Data Act of 2024

  • Biomedical Research
  • The Honorable Larry Bucshon, MD
    United States House of Representatives
    2313 Rayburn House Office Building
    Washington, DC 20515
  • The Honorable Kim Schrier, MD
    United States House of Representatives
    1123 Longworth House Office Building
    Washington, DC 20515
  • The Honorable Derek Kilmer
    United States House of Representatives
    1226 Longworth House Office Building
    Washington, Dc 20515


Dear Representatives Bucshon, Schrier, and Kilmer,

The undersigned organizations would like to thank you for your leadership in sponsoring the Access to Claims Data Act of 2024. This bipartisan legislation would establish a process to allow clinician-led clinical data registries to request and obtain timely, broad, and continuous access to
federal claims data. Quality improvement, innovation, health care transparency, accountability and value are at the forefront of our organizations’ mission. This legislation would make tangible strides to help us further those goals by providing an essential tool to create a safer, more efficient, and patient-centered health care delivery system.

Clinician-led clinical data registries, like those that our specialty societies operate and maintain, are major sources of real-world evidence that are uniquely positioned to drive quality and effectiveness research but face significant regulatory barriers in federal programs. When registry data is combined with Medicare, Medicaid, and State Children’s Health Insurance Program (CHIP) claims data, registries can facilitate both quality improvement efforts and longitudinal studies. This outcomes-based work gives surgeons and other practitioners critical insights to improve health care quality and efficiency.

Read the full letter here.