Re: Recommendations for Cures 2.0 Legislation
Dear Representatives DeGette and Upton:
The undersigned members of the Physician Clinical Registry Coalition (“Coalition”)
write to offer our recommendations for legislative reform to include in the Cures 2.0
package. The Coalition is a group of medical society-sponsored clinical data registries
that collect and analyze clinical outcomes data to identify best practices and improve
patient care. We are committed to advocating for policies that encourage and enable the
development of clinical data registries and enhance their ability to improve quality of
care through the analysis and reporting of clinical outcomes. Most of the members of the
Coalition meet the definition of clinician-led clinical data registry under the 21st Century
Cures Act and have been approved as Qualified Clinical Data Registries (“QCDRs”)
under the Merit-Based Incentive Payment System.
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