The AANS and the CNS have endorsed Ellie’s Law (S. 895/H.R. 902), legislation that would authorize $10 million in funding for the National Institute of Neurological Disorders and Stroke to further knowledge and understanding of brain aneurysms and how to manage and treat this condition effectively. The legislation is sponsored by Sen. Richard Blumenthal (D-Conn.) and Rep. Yvette Clarke (D-N.Y.). In letters to the bill’s sponsors, the neurosurgical groups noted that an estimated 6.6 million people in the U.S. have an unruptured brain aneurysm, and an estimated 30,000 people suffer a rupture, 50 percent of which are fatal. Of those who survive, about 66 percent suffer some permanent neurological deficit. Notwithstanding its widespread prevalence, federal funding for brain aneurysm research is almost non-existent.
Click here to read the Senate letter and here for the House letter.